Collaboration between social and health care facilities and paediatric palliative care teams in France: Results of a multiregional retrospective exploratory study

Purpose - In France, collaboration with social and healthcare facilities hosting children with Paediatric palliative multiple disabilities is included in the missions of regional resource teams for paediatric pal care; liative care. This study aimed to identify the nature of the first request for intervention of the Social and health regional resource teams for paediatric palliative care, the beneficiaries, the actions carried out care facility; and the position of the registered or nursery nurses in this collaboration. Material and methods - This was a two-year retrospective exploratory study on 97 cases of Nurse children with multiple disabilities followed by nine regional resource teams for paediatric palliative care and hosted in different types of social and health care facilities. The public concerned by the first requests of the facilities were the child, his family and the staff. Results - Sixty-nine percent of applications were for two or even three of these audiences. Initial issues were professional support (26 %), symptom relief (21 %), and care path development (16 %). Fifty-three percent of the interventions were performed by pairs of professionals. Actions of the regional resource teams for paediatric palliative care were: participation in multidisciplinary meetings (18 %), assistance in the development of the life and care project (16 %), liaising with the facility (13 %). Conclusion - This study demonstrates the existence and development of a collaborative spirit between social and health care facilities and regional resource teams for paediatric palliative care. The regional resource teams for paediatric palliative care rely on their knowledge developed in interprofessionalism. They bring their expertise in the care of these vulnerable children, their family and professionals through acculturation in a complex setting. The first request for an intervention opens on various underlying issues giving rise to various actions focused on the child. The nurse is involved in this collaboration in relation to its own role and the skills developed for this pivotal function. (C) 2018 Elsevier Masson SAS. All rights reserved.